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It is important that neurofibromatosis be managed by an experienced NF clinical team. Clinicians with limited experience can also partner with experienced NF practitioners. See Clinical Care Options.
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NF Central Plains wants to keep you iNFormed. One of the ways we do that is through regular newsletters featuring information about educational programs, social events, research updates and advocacy efforts. Join our email list to start connecting. Click here to read past newsletters.
Research News
In its newsletters, NF Central Plains includes clinical trial updates and opportunities to participate in research studies. The NF Network also has a rich supply of articles and notices about emerging NF research.
Anyone considering participating in a clinical trial should discuss the matter with his or her physician. NF Central Plains does not endorse or recommend any particular study. If you or a loved one is interested in participating in NF research, please click here to read our clinical trials brochure and learn more about the process.
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May 13Wednesday 121PM CDT
A Cuppa Joe with Joe
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Productive conversations with healthcare providers
May 27Wednesday 121PM CDT
A Cuppa Joe with Joe
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Advocating for your child
